The purpose of evaluative research in health services is to produce valid scientific evidence as to the contribution of health services to the improvement of population health and its cost. The Programme seeks collaborative research of excellence in health service evaluation focused on the priorities of the National Health System in order to directly transfer results for making decisions regarding the health policy, management, clinical practice and patient decisions.
The BiblioPRO technology platform is also comprised within this research programme.
1. Estimation of the Health and Social Burden of Chronic Diseases based on the Continuous Work History Sample (CWHS)
The Continuous Work History Sample (CWHS) contains work history-related microdata of 4% of all people paying into social security since 2004 (1.1 million people), and is updated every year. This source of information gives the Programme the opportunity to provide additional knowledge about the health and social burden of chronic diseases. The Programme also seeks out a strategy to link CWHS records (people paying into social security) with other available health data sources (e.g., the electronic clinical history) to create a permanent cohort of people paying into social security and their contacts with the National Health System.
2. Measuring Health Status
Perceived health is an essential indicator for monitoring health services. Programme groups are investigating a way to measure well-being, health-related quality of life, functional ability and disability and how to apply such measurements.
This subprogramme includes a transfer product: BiblioPRO, which is virtual quality of life instrument library. More specifically, BiblioPRO is the virtual health-related quality of life instrument library in Spanish, and seeks to become the virtual library of international scientific reference containing Patient Reported Outcome questionnaires (PRO) in Spanish. It combines research with translational activities, making it a unique resource for research and clinical practice. Through its virtual platform (www.bibliopro.org/index.html) it allows the PRO questionnaire authors to disclose and assess the results of their research, and it allows users of those questionnaires to make an informed selection of said results.
The objectives of BiblioPRO are to:
3. Evaluation of the Effectiveness, Costs and Quality of Health Services
Efficiency in the primary or secondary prevention of health issues and providing quality healthcare at a reasonable cost (sustainability) should be top priorities for public and private decision makers, and ultimately for each and every member of society. However, along with the effort dedicated to said health policies, and along with the indicators that directly indicate the impact on well-being caused by health issues (death, morbidity, disability, deteriorations in the quality of life of patients and family members), it is possible to identify other indicators that help to better understand their social impact.
See spanish website for furher information about research groups participating in this program.